Tag Archives: ipilimumab
bombs away!
So, my scans happened. One of my tumors -the largest one- shrunk. The other four grew. This to say, I didn’t respond to the Ipi/Nivo this time. Now, before you go blubbering on the subway (Dana), know that I consider … Continue reading →
Lights, Camera, Cancer
As published on Cure Today… but WITH the f-bombs… One of the running jokes that has been born in the midst of this long, mostly unfunny battle that melanoma has waged on my body started at my weekly poker game. … Continue reading →
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Tagged cancer, Cure Magazine, documentary, documentary film, filmmaking, immunotherapy, ipilimumab, malignant melanoma, medical, melanoma prognosis, melanoma recurrence, melanoma treatment, metastatic, metastatic melanoma, nivolumab, nivolumab success, NYU, social media, society for melanoma research, stage 4 cancer, stage 4 melanoma, storytelling, targeted therapy, writing
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6 Comments
back in the saddle again
“Angry. Sad. Terrified… The usual suspects. And a few I can’t identify.” That’s how I responded to a text message from my close friend, Aubrie, last Thursday morning. She was texting to see how I was holding up in the … Continue reading →
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Tagged cancer, cancer research, cancer treatment, documentary, fuck cancer, immunotherapy, infusions, ipilimumab, Korea, melanoma, melanoma prognosis, melanoma progression, melanoma recurrence, melanoma treatment, metastatic melanoma, mortality, MRI, nivolumab, scans, skin cancer, stage 4 cancer
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20 Comments
the verdict
Part I – Written in my journal Friday morning… 7/15/16 Today is huge. HUGE. I feel like I’m on my way to a courthouse to be sentenced, knowing that I haven’t done anything wrong but afraid that the jury is … Continue reading →
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Tagged BRAF, BRAF inhibitors, BRAFV600, cancer, cancer treatment, cobimetinib, cotellic, documentary, documentary film, filmmaking, fuck cancer, immunotherapy, ipilimumab, ipilimumab side effects, ipilimumab success, living with cancer, malignant melanoma, MEK inhibitors, melanoma, melanoma prognosis, melanoma progression, melanoma recurrence, melanoma treatment, metastatic melanoma, nivolumab, NYU, NYU Langone, PET scan, photosensitivity, side effects, skin cancer, stage 4 melanoma, stage four cancer, stage four melanoma, targeted therapy, treatment, tumors, vemurafenib, vemurafenib side effects, writing, zelboraf
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15 Comments
A Kick in the Asana
Hey y’all. So, I’m super-duper excited… my first post is up on Cure Magazine’s website. Please share the following link if you’re so inclined!! A Kick in the Asana: How Cancer Made Me a Yoga Person Also, I super-duper promise … Continue reading →
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Tagged blogging, BRAF, BRAFV600, breathe n flow, cancer, child's pose, cobimetinib, community, cotellic, Cure Magazine, fuck cancer, immunotherapy, ipilimumab, ipilimumab side effects, ipilimumab success, journalism, malignant melanoma, melanoma, melanoma prognosis, melanoma progression, melanoma treatment, metastatic melanoma, namaste, nivolumab, side effects, skin cancer, stage 4 melanoma, stage four melanoma, targeted therapy, thyroid, treatment, tree pose, vemurafenib, vemurafenib side effects, writing, yoga, yoga and illness, yoga practice, yoga with cancer, zelboraf
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3 Comments
Sun In The Sky, You Know How I Feel
Here’s the abridged version of what’s happened since my postcard. I was on the Vem/Cobi Combo for exactly three weeks. Since Cobimetinib (The MEK inhibitor) is a three week on, one week off med (like birth control), I was due … Continue reading →
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Tagged blogging, BRAF, BRAF inhibitors, BRAFV600, cancer, cobimetinib, cotellic, dabrafenib, fuck cancer, immunotherapy, ipilimumab, ipilimumab side effects, journalism, malignant melanoma, MEK inhibitors, melanoma, melanoma prognosis, melanoma progression, melanoma treatment, metastatic melanoma, nina simone, NYU Langone, photosensitivity, pura vida, side effects, skin cancer, stage 4 melanoma, stage four melanoma, suicide, sun protection, sunscreen, targeted therapy, thyroid, trametinib, treatment, TSH, vemurafenib, vemurafenib side effects, writing, writing career, zelboraf
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2 Comments
things that go bump in the night
this past thursday night, i hosted the weekly poker game i play in. i had spent all day preparing a gorgeous meal… it was well received, and it was an all around good night despite the fact that by the … Continue reading →
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Tagged cancer, documentary, filmmaking, fuck cancer, immunotherapy, ipilimumab, ipilimumab side effects, ipilimumab success, malignant melanoma, melanoma, melanoma prognosis, melanoma treatment, metastatic melanoma, nivolumab, nodular fasciitis, NYU Langone, side effects, stage 4 melanoma, thyroid, treatment, tumors
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11 Comments
la-la-land
i was watching footage of myself the other night with a tremendous director (and even more tremendous friend) and another special new cohort of mine. the clip is from only a few weeks ago, and i’m talking about all of … Continue reading →
the true meaning of the word ‘hero’
as you may recall from one of my earliest blogs, i had always envisioned drug infusions as a bunch of cancer patients in a circle of recliners, all hooked up to iv’s, perhaps crocheting, or engaging in, like, a book … Continue reading →
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Tagged cancer, cancer research, community, documentary film, fuck cancer, hero, immunology, immunotherapy, ipilimumab, ipilimumab success, melanoma, melanoma prognosis, melanoma treatment, metastatic melanoma, nivolumab, san francisco, SITC, SMR, society for immunotherapy of cancer, society for melanoma research, stage 4 melanoma, the big CR, treatment
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5 Comments
gestation (or, time to make the donuts)
Today was huge. Huge. When I got diagnosed (with stage IV metastatic melanoma, for anyone new tuning in) and moved home, my life was put on pause. I mean, I lived, I socialized with my peeps here and I ate … Continue reading →
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Tagged cancer, change, complete response, documentary, donuts, filmmaking, goals, ipilimumab, ipilimumab success, melanoma, melanoma prognosis, metastatic melanoma, nivolumab, nivolumab success, NYU, PET scan, scans, screenwriting, stage 4 melanoma, the big c
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16 Comments
Jen vs. Cancer 