Tag Archives: NYU Langone
bombs away!
So, my scans happened. One of my tumors -the largest one- shrunk. The other four grew. This to say, I didn’t respond to the Ipi/Nivo this time. Now, before you go blubbering on the subway (Dana), know that I consider … Continue reading →
the verdict
Part I – Written in my journal Friday morning… 7/15/16 Today is huge. HUGE. I feel like I’m on my way to a courthouse to be sentenced, knowing that I haven’t done anything wrong but afraid that the jury is … Continue reading →
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Tagged BRAF, BRAF inhibitors, BRAFV600, cancer, cancer treatment, cobimetinib, cotellic, documentary, documentary film, filmmaking, fuck cancer, immunotherapy, ipilimumab, ipilimumab side effects, ipilimumab success, living with cancer, malignant melanoma, MEK inhibitors, melanoma, melanoma prognosis, melanoma progression, melanoma recurrence, melanoma treatment, metastatic melanoma, nivolumab, NYU, NYU Langone, PET scan, photosensitivity, side effects, skin cancer, stage 4 melanoma, stage four cancer, stage four melanoma, targeted therapy, treatment, tumors, vemurafenib, vemurafenib side effects, writing, zelboraf
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15 Comments
Sun In The Sky, You Know How I Feel
Here’s the abridged version of what’s happened since my postcard. I was on the Vem/Cobi Combo for exactly three weeks. Since Cobimetinib (The MEK inhibitor) is a three week on, one week off med (like birth control), I was due … Continue reading →
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Tagged blogging, BRAF, BRAF inhibitors, BRAFV600, cancer, cobimetinib, cotellic, dabrafenib, fuck cancer, immunotherapy, ipilimumab, ipilimumab side effects, journalism, malignant melanoma, MEK inhibitors, melanoma, melanoma prognosis, melanoma progression, melanoma treatment, metastatic melanoma, nina simone, NYU Langone, photosensitivity, pura vida, side effects, skin cancer, stage 4 melanoma, stage four melanoma, suicide, sun protection, sunscreen, targeted therapy, thyroid, trametinib, treatment, TSH, vemurafenib, vemurafenib side effects, writing, writing career, zelboraf
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2 Comments
postcard from transylvania
You know that scene in, like, every single vampire movie ever… the one where the undead’s skin catches a sliver of sunlight and spontaneously bursts into flames? Well, that kinda sorta happened to me. I was grateful for the fact … Continue reading →
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Tagged anaphylaxis, BRAF, BRAFV600, cancer, cobimetinib, cotellic, documentary, epipen, filmmaking, fuck cancer, malignant melanoma, melanoma, melanoma prognosis, melanoma progression, melanoma treatment, metastatic melanoma, NYU, NYU Langone, side effects, skin cancer, stage 4 melanoma, stage four melanoma, targeted therapy, treatment, vemurafenib, vemurafenib side effects, zelboraf
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8 Comments
goonies never say die
One of the inevitable questions you are often asked when you are diagnosed with a historically terminal illness is ‘how often and in what capacity do you think about death?’ The question is usually worded more gingerly, or more awkwardly, … Continue reading →
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Tagged anaphylaxis, BRAFV600, cancer, cobimetinib, cotellic, death, fuck cancer, melanoma, melanoma prognosis, melanoma treatment, metastatic melanoma, NYU Langone, photosensitivity, side effects, spirituality, stage 4 melanoma, sun protection, targeted therapy, treatment, vemurafenib, vemurafenib side effects, zelboraf
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14 Comments
hell and back (with a side trip to the nail salon)
time is so funny. i was reading back my last blog post, just to see where i left off. it was seventeen days ago, yet it might well have been seventeen weeks ago – so much shit has gone down … Continue reading →
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Tagged BRAF, BRAFV600, cancer, cancer treatment, dabrafenib, malignant melanoma, melanoma, melanoma treatment, metastatic, ned, NYU, NYU Langone, side effects, targeted therapy, trametinib
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11 Comments
bullet points
i’m not much in the mood for writing at the moment. but i know that i must, because i know that my last post scared the bejezus out of a lot of people, and there were still so many unanswered … Continue reading →
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Tagged BRAF, BRAFV600, cancer, dabrafenib, fuck cancer, melanoma, melanoma treatment, metastatic melanoma, NYU Langone, stage 4 melanoma, trametinib, treatment
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8 Comments
things that go bump in the night
this past thursday night, i hosted the weekly poker game i play in. i had spent all day preparing a gorgeous meal… it was well received, and it was an all around good night despite the fact that by the … Continue reading →
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Tagged cancer, documentary, filmmaking, fuck cancer, immunotherapy, ipilimumab, ipilimumab side effects, ipilimumab success, malignant melanoma, melanoma, melanoma prognosis, melanoma treatment, metastatic melanoma, nivolumab, nodular fasciitis, NYU Langone, side effects, stage 4 melanoma, thyroid, treatment, tumors
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11 Comments
la-la-land
i was watching footage of myself the other night with a tremendous director (and even more tremendous friend) and another special new cohort of mine. the clip is from only a few weeks ago, and i’m talking about all of … Continue reading →
Waxing Parenthetical
There are days when I forget that I have cancer. Since my first scans told me that, for now, I’m in the clear, I have been so focused on trying to formulate a plan for moving forward that I sometimes … Continue reading →
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Tagged cancer, fuck cancer, ipilimumab, melanoma, melanoma prognosis, melanoma treatment, metastatic melanoma, nivolumab, NYU, NYU Langone, stage 4 melanoma
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8 Comments
Jen vs. Cancer 